Yes I had an okay experience. The "ok" is relative to everyone else's horrible. Was it a picnic...? No. But was it doable? Yes.
Christine is right a lot of it is about intake - know what you have to do, and do it. Plan for the worst. Hope for the best.
By this I mean - note what others have gone through and start off working towards putting off those symptoms. For example neck burns... Day one I started applying cream to the area several times a day (never right before rads) from day one I rinsed my mouth out several times a day, invested in a baby toothbrush and cleaned it so that I never had food sitting in there. (I would leave the treatment room - go to the bathroom rinse and spit there and apply my cream. I also cleaned and rinsed after every meal/snack. I yawned repeatedly and did my neck exercises daily to help ward off the tightening of the scar tissue, and stretch my internal muscles and despite how painful it was I took my foods by mouth (for the last week of treatment it was primarily boost - and I made myself drink it.)
I bought club soda, flattened it, drank lukewarm water (cold hurt) avoided foods that burned, etc.. But keeping your mouth clean is very important.
I invested in a waterpik, and a humidifier.

Overall I had a week where I resorted to pain meds.

If you're sensitive to pain... Do stay on top of it.

Think about things that make you feel good (obviously not alcohol or drugs) but things like hot showers etc.. And follow through with them. I also slept a lot.

A lot of what you experience depends on where the rads is aimed as well, I had it mostly on the left side of my head, and bilaterally on my neck, so basically I hurt all over... I had blisters in my mouth and throat.

Bland soups, high nutrient smoothies, soft foods.

Hugs - you will get through it.

Last edited by Cheryld; 04-07-2014 07:31 AM.

Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan