|   Contributing Member (25+ posts) 
 Joined:  Nov 2013 Posts: 34 |  Hi Gloria,I am happy to hear that progression after a short time is minimal. I believe that immunotherapy would take some time and progress wouldnt be seen overnight. I think that John or I or others with distant mets didnt get this way overnight, so it would be logical that reversing it by way of the immune system would take time also. I guess my case presents as unusual. (The MO's description).I had a pet in Jan. and a follow up Ct on Feb. 28th. Some of the lymph nodes were actually smaller. I had cardiac bypass surgery in December, about 2 weeks prior to Jan. petscan. Sooooooo maybe? Last nights tumor board suggests a biopsy of the nodes and see where that goes. The problem with that is that my throat opening is only 4-5cm wide while the camera is 6cm. It now appears that we are going to do a new pet late next week or early the next and see where that goes. The frontline therapy right now is trying to find a Dna match in which to start targeted therapy. I am still looking for a clinical trial in the SW U.S. if you hear of anything. good luck to all club members
   discovered a golf ball in my neck St.Paddy's day 2010.
 Dx stage 4a left tonsil ca may 2010 at 50
 non smoker, moderate beer drinker
 HPV-16 pos.
 tosillectomy
 9 weeks Cisplatin
 35 rads
 nov.2010 PET NED
 2011 2x PET NED
 2012 2x PET Ned
 3/13 Pet NED
 SEptember 2013 Pet uh-OH.questionable and anxious
 follow up pet, yup, its back.
 mets to sub clavivular and mediasteinum nodes
 biopsy positive scc.
 trying to figure out next step
 my imaginary friends think I am crazy.
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