Wow... I am speechless and so sorry. I wish there was something more they would do for you... Perhaps they're worried about putting in a shunt or something as that could leave you open to infection and cause another whole host of problems. I know that makes no sense, in light of what you are facing but the medical establishment sometimes does nothing as a course of treatment. They could possibly have prolonged a friend's life two years ago by simply putting in a peg to help maintain her weight so she could go through a third round of chemo, but they dallied about until she'd lost too much weight for the treatment. They deliberately did this. I understand that sometimes they think they are helping by not prolonging the inevitable but this should be the patient's choice. I am hoping for a miracle for you and that you are comfortable. Please know that you are loved. Hugs.