Sorry to hear your journey is so complex. I don't have the words of wisdom you seek, but I did want to welcome you to the family.

Your case is one of the more complex ones I've seen, so it may take a day or two for the people experienced in what you need to know to find you here.

Don't get discouraged, they will be along directly.

Gook luck,

Tony

Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)

09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good