Hello folks, got my CT scans results back today. Had a scan of the chest, abdomen and pelvis. Doc told me over the phone that the concern is a spot in the mediasteinum. Tumor board recomennds chemo and possible radiation at this point. gonna meet the CCC's medical oncologist to discuss plan. At least there is a plan.( just want a fighting chance.) The ENT oncologist explained that there is also some brand new stuff they want to talk to me about. I guess this is mediocre news since I knew from the petscan that there was uptake in the nodes. obviously wanted to stay away from mets to lungs, liver, etc. so thats a partial relief. dont wanna get to high or to low. Just wanted to let you guys know where I am at.


discovered a golf ball in my neck St.Paddy's day 2010.
Dx stage 4a left tonsil ca may 2010 at 50
non smoker, moderate beer drinker
HPV-16 pos.
tosillectomy
9 weeks Cisplatin
35 rads
nov.2010 PET NED
2011 2x PET NED
2012 2x PET Ned
3/13 Pet NED
SEptember 2013 Pet uh-OH.questionable and anxious
follow up pet, yup, its back.
mets to sub clavivular and mediasteinum nodes
biopsy positive scc.
trying to figure out next step
my imaginary friends think I am crazy.