 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Cheryl, welcome to OCF! You have found the very best source for info and support for OC. Like your husband, I finished my initial round of rads and chemo in Sept 2007.
Your husbands issue certainly sounds like it would be very scary for him. I will try to give you a couple ideas but please understand that none of us are medical professionals, we are fellow survivors and caregivers. My suggestion would be to seek another opinion with an ENT from a comprehensive cancer center. Im wondering if robotic surgery would be able to help remove some of the scar tissue. But this would also cause scar tissue so it may not be something that would work. Some members will have their throats surgically stretched to widen things. It may require repeating to be successful and also doing it every couple years again.
Best wishes to you both!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | 
