hi, im sonia im 44 been a smoker for years and in november 2013 was diagnosed with tongue cancer scc. on 11/12/13 i had surgery to remove. results after the surgery was that they removed it all. i probably lost about a 1/4 of my tongue. not a real lot. they have stretched the top of my tongue, (the taste buds) around and underneath. it has healed very well. i was then to go see rad doctor who said radiation not needed as the size 19ml by 7ml and the location did not justify radiation. and the fct that i would lose a lot of teeth as well. but he looked at my ct scan and said some glands were bigger than normal. so sent me for PET scan. this came back with a red blob where the cancer was. this is 6 weeks after surgery. my tonsils were also red on the scan. he said that is quite normal. He said the red on the scan in my tongue could be just scar tissue, but he is sending me back for another scan on the 1st of may. Event hjough i have healed very well i have a number of lumps round the scar from surgery, and some quite painful. i also have been having a lot of pain like sharp stabbing pain in my tongue which i also get in my bottom lip in the centre. i get pain in my ear and my jaw absolutely kills me and so does my tongue. my Doctor sent me for ultra sound thinking it could be a blocked salivary gland. but it wasnt the cause and that is normal. . i have to take strong pain killers to stop the pain. i am unsure of what is causing this. and my Gp doesnt seem to have any idea. i am going back to my ENT on thursday. maybe he can help. but he also isnt one for talking and very hard to get any info out of him. any suggestions would be great. and also THANK YOU for having me and listening to me ramble smile


november 2013 biopsy/ partial exision on right side tongue
confirmed scc
dec 11 2013 surgery to remove cancer
19mm by 7mm
no RAD
bad nerve pain caused by tumor growing on nerve
21/2/14 started Lyrica pregabalin
17/4/14 biopsy\ partial glossectomy
stage 4 tumor left side tongue and floor of mouth.
2/6/2014 opn to get clear margins/ bilateral neck dissection. bone removed from jaw & free flap on floor of mouth & more tongue removed.
21/7/14 radiation and chemo