"OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | I would work on the referral to an ENT. That is where you should be when you have any form of H&N cancer. Texas has one of the best CCCs in the states MD Anderson. An oral surgeon is good for quick things, but in all honesty you need to see an ENT. Call the dr. Get the referral. Lymphnodes swell for many reasons, and it could be an infection or something but you need to know this for sure. The wait and see doesn't sit well with me. On the back of your head would be unusual, but cancer moves in mysterious ways sometimes. And even an ENT doesn't always have a lot of experience with H&N cancer, you need someone familiar with it.
We lost a woman here the same day Whitney Houston died - All I remember was her telling me they did the surgery, removed some nodes and told her she was cured,a node popped up a while later - she waited a bit to have it checked and when she did go to have it looked at they found out it was cancerous, and another 20 beside it were also full of cancer - when the pathology came back. I still remember her telling me... I guess I waited too long to have it checked out.
She is the second person I know with that story. The other one is still fighting, but he's newly diagnosed. Not every ENT knows cancer. You need an ENT who specializes in cancer.
Don't get me wrong oral surgeons are great, but they do what they do.
hugs.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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