FWIW my tonsil SCC spread to my lymph system between my left lung and heart, and then to the pleural lining around my left lung and a spot down on my colon, that last surprised my medicos, but all confirmed as the same SCC crap (ha ha, get it?).

I'm in a drug trial (GDC-0980) and seem 'stable', may know more about if this is helping or not in about a week.

Chin up!


47 yr old male non-smoker, social drinker, fit. Jan'10, Stg3 rt tonsil+rt neck SCC, HPV+, rad+chmo Vancouver Cda. 2yr clear Apr'12 London UK. Apr'13 mets recur to lymph btw left lung & aorta, 3x Cisplatin+5FUchemo+20 rad, was all clear but 6-mo PET-CT shows mets to pleura around left lung, participating in St 1 trial of GDC-0980. GDC lost effect and ended July'14, bad atrial fibrillation requiring hospitalisation, start more standard chemo 10 Sep 2014.
Sadly has passed away, notified Jan 2015.