Patient Advocate (1000+ posts) Joined: Jul 2003 Posts: 1,163 | Hello Sara,
Being a caregiver for your dad will be one of the toughest jobs you will ever have. I believe there is a special place in heaven for caregivers. Are they planning any surgery before or after the chemo and radiation? What type of chemo drugs will he be receiving and how often? Is he going to have field radiation where they radiate the entire area or IMRT which is a more precise way to deliver the radiation with less side effects. It is a rocky road at times but many of us have been through it and survived. He can to!!!
Remember to write all your questions ahead of time because you never remember them all at the doctors. Also when he starts treatment he will lose some weight. Tell him to eat like a pig before treatment starts. After treatment he may not be able to eat for awhile. Have they discussed a PEG tube to supply his food in case he can't eat? Many of us have had them and it was a relief knowing I was getting proper nutrition. Some go without and do fine. Everyone reacts differently to similier treatment. Also when treatment ends remember to measure his progress in weeks not days. The radiation continues to do it's damage about three weeks after treatment ends. Please post any questions you have an someone with similier treatment will respond. You are now part of a large International Family that is here to support you in any way we can. Glad you found us but sorry you had to. It is a tight band of brothers with a main goal of educating dentists to do an oral screening every six months at cleaning time. Early detection is one of the best defenses of this most unforgiving diaease.
I hope his recovery goes well!!
Your Friend, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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