I also say go for a 2nd and 3rd opinion. Although lucky, I have had 8 recurrences that were treatable, so far. I'm on my 5th different radiation treatment, and there are ways to do more radiation in some, and had 192Gy, really more with IORT, so far, while most say they had the max at 70Gy, and can't have any more. Not all doctors or hospitals may have experience to do this or want to risk it, but I have some of the best. For recurrences, surgery is usually the best option, followed by maybe radiation, chemo radiation, but each case is unique. NYC has the most top doctors, and hospitals in the country, and know a half dozen that are top in ENT, and treat recurrences often. If possible, you can stay at Hope Lodge on 32nd for free, which I can't say enough about, and consult with the various hospitals in Manhattan...Beth Israel, Mt. Sinai, MSKCC, NYU, NY Presbyterian, Lenox Hill to name a few.

Best of luck.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs