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| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF! You are in the right place to get info and support to help get you thru your treatments. There are several members who are young and have no known cause. Im sure its very frustrating not knowing what caused your illness. But even though you dont know what caused it, the treatments are still the same.
best thing you can do for yourself is to focus on what is in your control..... your intake. This is what will make all the difference in how you get thru this. By ensuring that every single day you take in a minimum of 2500 calories and 48+ oz of water you will do better. More is preferred, the above numbers are the bare minimums. Plus around chemo days push the extra water up to 64 or even 80 oz daily. I know it sounds like alot but with everything your body is going thru this is a necessity. If you struggle with fluids, ask for an open prescription to get hydrated in the chemo lab a few times per week. The brutal treatments really can do a number on your body, your resistance, morale and stamina...too much to worry about for one person! Thats why I said to focus on what is within your control... your intake. Everything else comes second.
If you notice any difference in your hearing, even slight buzzing or very minor changes, notify your doc immediately. Cisplatin is known to cause serious hearing loss in some patients.
Best wishes! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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