I just got my tube this week and decided tape was going to drive me crazy. It was the ONLY option suggested by the home nurse. Argh.

I cut a band off one of my husband's old undershirts I was saving for rags, and am using a ponytail holder to take up the slack. Cheap and comfortable for this early post-op time.

I can't wait to see some of those other options.


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery