My husband had radiation treatments for cancer of the tonsil in 2008. The radiation treatments damaged his spinal cord and he has been diagnosed with delayed radiation myelopathy. He has constant pain and progressive muscle weakness. The head of the neurology department at the university said there is nothing that can be done and it will just continue to progress. He has tried a pain management clinic but no relief from that either.
Is anyone aware of any research being done or things you have tried to alleviate pain or slow the progression?
Karalee
10/18/13 SCC Stage IV, T4aN2bM0, right cheek, sinus cavity, upper jaw bone, 1 lymph node, HPV Neg, Non Smoker, Age 62
11/18/13 Surgery - composite resection right retromolar trigone and right selective neck dissection plus reconstruction, margin <0.1 cm
11/20/13 Emergency surgery for ecchymosis of flap
2/12/14 Start IMRT, 30 treatments ended 3/25/14
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