 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | No he needs to see a dentist and ask if they are experienced with oral cancer, it's better if they are.
Sorry (and welcome)that you both are having to deal with this but this site will be worth it's weight in gold. Encourage him to post as well.
Watch out for Cisplatin especially if he will be getting it only 3 times (larger doses) vs 6 weekly smaller doses as Cis has a nasty reputation of causing permanent high frequency hearing loss. A tell tale sign is if he starts to hear "ringing" in his ears which usually will start, if at all, after the 2nd large dose.
He MUST consume tons of calories and water starting now through at least the end of his first year post Tx. We recommed at least 2500 to 3000 cals EACH and EVERY DAY and 48 ozs of water.
Remember each of us can react differently and nothing that happens is abnormal. His reaction to the concurrent rad and chemo can be anything from mild to extreme but most of us seem to have our worse times starting around week 4 and lasting until about the 2nd to 3rd week post Tx with the worst time, believe it or not, coming after the radiation ends.
Do ask us ANYTHING.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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