Tamsin, you have chased this for a good part of a year now and all the docs seem to be saying the same thing. At some point you need to either accept nothing is wrong that warrants so much worry in your life or you need to find completely different doctors till you run out of choices. You acknowledge you think smoking cessation is what you need to do but you don't stop. I'm not sure what everyone else will be able to do for you at this point. Have you considered antidepressants or antianxiety meds? It's time to try something different. Even worrying without a serious health problem this long will stress the body beyond belief. Having a serious health problem and letting it just progress isn't good either. You've come up with quite a few diagnoses from Dr. Google but I'm not sure anyone here can tell you as much as a trained doctor can. I feel for you as worrying about health issues is very tough. Good luck and keep on searching till you get your answer.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023