I had surgery the first round, and am back for a second round. I am still positive we made the right choice to pass on rads (no chemo was the suggestion at that time) the first time. But now I am back after another surgery, facing rads and chemo both. I am frightened, but I am also glad that my doctors and I caught the recurrence. It goes differently for everyone. On the plus side, whatever you choose, somebody here will have been down a similar path.


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery