Mark, welcome to OCF!

Write down your concerns and also the replies the doc gives. Take someone with you as an extra set of ears. Too often bad news will make the ears stop working and we will not hear anything else said.

If you have not gotten a full bloodwork done including thyroid and testosterone its important to get this done before you start treatments.

I would also discuss with the MO about getting weekly cisplatin instead of the 3 big bag method. The weekly smaller doses are easier to tolerate for most patients. Also ask your doc about how often they see hearing issues with cisplatin. If you notice anything at all different about your hearing after getting cisplatin tell your doc immediately and do not get another dose. they can switch you to something else. Cisplatin is known to cause permanent hearing loss in some patients. It didnt happen to me but it did affect our other admin, David.

Have you been to the dentist for a good check up and flouride trays yet? If not, do so right away and get started on using the flouride trays.

Not all patients suffer thru their treatments. Some will sail right thru continuing with their regular life almost exactly like they always have. One of our newer members, Tony just finished and he only had some mild side effects (mouth sores) the final week of his treatments. Hopefully you will be one of the lucky ones. This is within your control..... by adhering strictly to taking in at least 2500 calories and 48+ oz of water every single day you will get thru it easier. By maintaining your weight it will help you to avoid the pitfalls of dehydration which makes you feel awful. I suggest getting the doc to write you an open prescription for getting hydrated in the chemo lab whenever you feel like your water intake isnt where it should be. You will instantly feel much better after getting the IV fluids.

Thats just a few topics to discuss. Good luck tomorrow!!!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile