Kristen,

Sorry to hear about your recurrence. As Don says, the port may preclude a lot of physical activity including forms. For whatever reason, they discouraged me from lifting weights or doing a 100 mile bike ride when my port was put in. I didn't ask if it was because it was new and soon I wasn't in condition to consider either for a while. As far as the PEG you can get a MIC Key or button. It rides almost flush with the skin and has a detachable hose when needed that snaps in and out. You even get a thin and thicker tube for water or other.

Hope this helps.

Ed

SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023