Hello again,
I just re-posted this to this new forum. Thanks Brian, great idea, the LT effects are quite a problem for many.
H&N cancer, the gift that keeps on giving!!!!!!
just an update here. I am 4 years post TX and do deal with a good chunk of pain from radiation induced fibrosis in my neck. So a bit of background. first of all, I am cancer free after 4 years---yeah and I am doing generally well, strong, work,back in action! Now to the down side, my neck did take a pretty good beating. I do aspirate and have a harder than normal time eating. That being said, I do not remember what normal was!!!
so I have been dealing with some real pain in my neck, neck pain that even gave me headaches. I tried drugs and PT, no luck, in fact I would say that if I take opiates, I need so much I get dopy, not a good choice. I also tried some "herbal" solutions. no bueno!. So I saw some research from a Dr M Stubblefield at Sloan Kettering in NYC about using Botox. It did not work for me. I really was quite disappointed, I have had daily pain for as long as I can remember, just plain ol' stinks. But I would encourage anyone with this ailment to at least look into it, The use of Botox seems like a very valid treatment, just did not work for me.
So I will now try acupuncture and of course will update the forum.
If you want to know more just PM me.
I hope we all have a very merry Christmas!!!