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| Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF! You will find lots of info ans support here. Read and learn about your illness and what you can do to best prepare and advocate for yourself. There are many pages with important info and things to ask your doc on the main OCF pages. Read the posts and see what others in your situation experience.
Best thing you can do is find the best medical team you can and who you are comfortable with then go with what they propose. At a comprehensive cancer center (CCC) you will have top notch physicians who work together as a team based approach to each individual case. Together the specialists will prepare and individual treatment plan.
A feeding tube sounds shocking but its fairly common. There are 2 sides to this and many online spats have been over what I call the PEG wars. Im pro peg but also encourage patients to eat and drink as much as they can and keep doing it throughout their treatments. In my opinion, its better to have one and not need it than to be in the position of needing an emergency peg tube installed due to malnutrition and dehydration. Always be prepared. There are hundreds of peg tube posts to read on the forum.
Buckle up, you have a long road ahead. We will be in your corner to help guide you along the way.
@ Don ..... I renamed and moved Jones's first post. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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