So far, I am not at a CCC. We did visit one for a second opinion at one point, and the doctor we saw was SO bad, I think treatment at his hands would be a death sentence. And I had not heard much good about some of his colleagues. So that center, at least, I will be avoiding. I have already met the docs we are likely to use, when we were pursuing options and understanding all summer.


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery