 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Many of us have reported getting Shingles post Tx and it is painful and it can and should be treated immediately.
Re the 3 weeks post Tx and not getting better, unfortunately that's par for this treatment. We go overboard telling newbies to expect the worst the few weeks post Tx. It is usually around this time that many of us finally "walk out of that tunnel" and start our long recovery road. Even when he starts to feel better there will be bad days mixed in with the good ones and slowly those bad days will go away. This recovery can and usually does take 2 years with the 1st year usually the worst so patience is the key to getting thru this with sanity intact.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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