I was just diagnosed with mucoepidermoid carcinoma in March. I had my surgery and they got all of the cancer. I am in the same boat as you. It is hard to find anyone with this type of cancer. I have tried to research on but there just isnt any info out there on our type of cancer. To hear that you are an 8 year survivor is very encouraging to me. I am so afraid that it will come back.

Mucoepidermoid carcinoma-intermediate grade. Removed 3/05. Additional surgery to get clean margins and selective neck dissection 4/05. 30 lymph nodes removed. All clear!!