"OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Honestly - there is a woman here who had a total glossectomy a few years ago. She is completely healed - can speak on the phone, eat and taste. (apparently there are tastebuds all over your mouth not just your tongue) She works a normal job. I am not saying there will not be challenges but with perseverance she can get closer to normal than one might expect. Sometimes they tether the tongue to the floor of the mouth this can be adjusted later. The most important thing is she walks away from this alive. Please don't despair. How she does after all this is done depends on the reactions of those around her and most importantly her own desire to get back what she's lost. As long as she still has some of her tongue, there is the potential with therapy to recover a fair amount of what she has lost.
hugs
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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