Contributing Member (25+ posts) Joined: Oct 2013 Posts: 33 | Tomo,
I am signed up to participate in a phase 1 clinical trial starting tomorrow. It is a drug that is supposed to reduce the side effects of mucositis. I receive the drug the first 14 days of treatment and then it stops. That is all that has been approved until they figure out the correct dosage and how safe it is. I have talked to the first guy to participate and he is into week 4 with little or no mucositis and mouth sores. I am getting a higher dosage then he received so I am hoping to make it longer before I start having problems. It kind of stinks we got cancer now and not couple of years down the road when the drug has been approved. I decided to participate to help the guy or gal down the road who is going through this. However you would like to think if they find the miracle cure they wouldn't wait.
Curt
Age 43, nonsmoking, social drinker Left tonsil cancer SCC HPV+16 Stage IV tonsillectomy, robotic radical tonsillectomy and neck dissection 4 of the nodes removed had cancer. 2 had extra capsular spread. 3x cisplatin 33x rad 11/18/13 Completed treatment 01/08/14
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