Have a notebook and pen handy while you are educating yourself on the subject. If you're anything like I was at this point you have a million questions fighting in your head for attention. Write down all these questions while you are researching. Make sure the doctor takes the time to answer all of them in a way you can understand. Don't let them play the "we'll get to that later in your treatment" game. If you are worried about it now, get an answer now. These forums are a great resource, but they can also be very overwhelming in these early stages of dx and treatment. If you find yourself getting bothered or worked up at all, take a break. I had to take breaks from the forums for weeks at a time. Especially during the time between the dx and the surgery. That feeling of "this thing inside me is growing and getting worse, why is nothing being done NOW?" was very hard to ignore. Use the forums and the people on them for any questions. You've found a wonderful group of warriors here.

Last edited by Danbert; 11-11-2013 03:59 PM.

Dan

Stage 4 SCC on right underside of tongue

DX on 7/19/13 at age 29, no tobacco, light drinking

Partial Glossectomy/reconstruction/neck disection 8/20/13
Temp Trach, PEG tube

4/59 lymph nodes cancerous, 1 with extracapsular extension

Chemo - Cisplatin - 3 treatments started on 10/01/13
Radiation - 33 treatments started on 10/02/13