Welcome to OCF. We have had several members with your type of cancer. Its treated the same as SCC. You are just beginning your journey. Dont worry, we will help you every step of the way.

Best thing you can do is to be treated at a comprehensive cancer center (CCC). Sorry but off the top of my head I dont know if the center you mentioned was one or not. I just remember the top 5 or so like Moffitt, MDAnderson, Sloan Kettering, Johns Hopkins, etc. AT a CCC they will use a team based approach, all the specialist get together to give their treatment plan so everyone is on the same page. At the very least go to one for a second opinion. Very likely your treatment will be surgery with radiation and/or chemo. Just remember whatever specialist you are talking to (when not at a CCC) will always recommend their specialty (surgeons always recommend surgery, RO will always say you need rads, etc). Take your time to read and absorb info from OCF so you are an informed patient and a strong advocate for yourself.

When you go for your appointments take someone along. Its too easy to hear some bad news and turn your ears off. Also write down questions and the answers when you have appointments. There is so much info that nobody is able to remember all of it. Some members will tape record their appointments, just ask the doc first.

Best wishes with everything!


List of Cancer Centers