 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | I'm still curious how the functions of your vagus nerve will be handled Paul. As my breathing problems escalated the pulmonologist stated I just wasn't trying hard enough to breathe. As things escalated to the point of discussions leaning towards possible ventilator things improved. I still struggle from a neuromuscular perspective when I lie down on my back.
An overlooked piece of this is that CO2 can build up in the lungs from weakened breathing muscles caused by radiation damage to the vagus nerve. This can cause lightheadedness as well.
There just aren't enough specialists or patients to be able to find anyone that can chase this stuff.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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