Hello everyone,
My PT Has a theory as to why my stage II lymphedema,(non pitting)progressed so quickly after removal of my staples and drainage tubes from my MND surgery. She and I think that my Lymphatic system was already damaged years ago. When I was in my twenties I went through periodic lymph node swelling and over activation from Drugs that were pushed though FDA vigorously to save countless lives from HIV/AIDS. This along with my Radiation only a few months before my surgery most certainly could have been instrumental in my stage III Lymphedema (pitting) and fibrosis spreading from my scare out further now reaching for my entire left side of neck spreading to my shoulder. No amount of lymphatic massage and full head compression garments and wraps seem to keep it in check. So I am waiting to see if my insurance will treat this as ( non reconstructive) Medically necessary to my well being. I know their is transplantation and redirection procedures. Any thoughts or Ideas would be wonderful. Thank you for your time. Shawn U.


. Radio/Erbitex:(35/6.) .6/13 RSSC with met.to left neck.9/11/13 MND with left tonsil removal.9/18/13 margins failed, .Dx Terminal. 10/22/13 Dx.StageIII Lymphedema. Carboplatin/Taxol, cancer progression,WECF
3/14/2014 given 2 weeks, 3 maybe. All the veins in my head are slowly leakinging due to Ehlers Danlos syndrome. lucky thing is that my spinal fluid leaking out my nose is slowing the build up of pressure in my huge, huge head. you would not believe.