These are the chemo choices that I was presented with after asking for a second, same as the first opinion. I have levels of platelets up to about 94. RO seems to think that if they watch me close, and of course blood test before every treatment. If platelets fall I will be given more ASAP. Has anyone had experience with either of these drugs or perhaps both. They are not specifically marketed for RSSC but some off label use has been done.

Thank you for your time, Shawn U.
P.S Has anyone heard about Paulb's ND?

. Radio/Erbitex:(35/6.) .6/13 RSSC with met.to left neck.9/11/13 MND with left tonsil removal.9/18/13 margins failed, .Dx Terminal. 10/22/13 Dx.StageIII Lymphedema. Carboplatin/Taxol, cancer progression,WECF
3/14/2014 given 2 weeks, 3 maybe. All the veins in my head are slowly leakinging due to Ehlers Danlos syndrome. lucky thing is that my spinal fluid leaking out my nose is slowing the build up of pressure in my huge, huge head. you would not believe.