 "Above & Beyond" Member (500+ posts)
Joined: Oct 2013 Posts: 559 Likes: 1 | Hello Allen:
Welcome to a new family, the oral cancer family. Yes, I know OCF really stands for Oral Cancer Foundation, and that is an important distinction and an important group to all of us. But the members are also just one really big family, brothers and sisters, aunts and uncles.
I used to say welcome to the forum, but that's way too sterile for a group this caring and supportive. People who not only listen, but actually know and understand what you are going through, what your needs and fears are and what has worked for them during this unwanted, unplanned roller coaster chapter in their lives.
Your situation is particularly important to me as I start radiation next week myself. You are already having treatment symptoms I have only read about.
So, don't be a stranger. Write when you can about what concerns you, because we all care.
Once again, welcome to the family.
Tony
Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)
09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good
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