OP Senior Member (100+ posts) Joined: Aug 2013 Posts: 144 | Well just got back to my appointment, Doctor ordered some tests but thought that it was a mild case Ie. pitting not above the knees. He thinks that it is possibly lack of mobility.( considering that I went from being on my feet 8-10 hours a day to sitting at this computer for most of the day. He thinks the edema is not related to the Lympedema. And said it was ok to raise my legs above my heart to see if that helps, also wants me to start increasing my time on feet slowly over the next week or so. So he did tests blood tests to check for signs of kidney over work, heart enlargement and others Cbc chem 4. Oh and thought it might be electrolyte inbalance. And told me if symptoms of shortness of breath, pitting edema that progresses up past the knees. fever above 100 degrees. To go to the ER. So Good news.
. Radio/Erbitex:(35/6.) .6/13 RSSC with met.to left neck.9/11/13 MND with left tonsil removal.9/18/13 margins failed, .Dx Terminal. 10/22/13 Dx.StageIII Lymphedema. Carboplatin/Taxol, cancer progression,WECF 3/14/2014 given 2 weeks, 3 maybe. All the veins in my head are slowly leakinging due to Ehlers Danlos syndrome. lucky thing is that my spinal fluid leaking out my nose is slowing the build up of pressure in my huge, huge head. you would not believe.
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