Hi All,

I continue to scour the forum archives for information but think I need some direct input from the knowledgeable people that have come before me to help with a decision after my PET results. Basically, the decision is whether or not to have surgery to remove a suspected node (which they would end up removing the nodes in the region).

The test results were generally positive, and used terms like "marked response to therapy, minimal residual activity compatible with near complete/complete resolution. SUV of 1.9 although this could represent reactive change, this is technically indeterminate." Bacically, there is a node that shows moderate uptake. This same node was biopsied 6 weeks ago (too early in hindsight) but the results did come back negative.

I met separately with my MO, RO and ENT surgeon to discuss the results of the post treatment PET. The MO and RO seemed very positive about the results and were in favor of waiting and repeating the PET in 3 months. The ENT surgeon is recommending surgery. The obvious questions were asked regarding surgery risks - which I am not sure I fully comprehend given the dance they have to do with the nerves in the area. It is a bit more unclear the risks of waiting (spread of cancer vs. getting it now if it is in fact residual cancer).

Thus my dilemma. After meeting the MO and RO, I was pleased with their positive interpretation. Meeting with ENT surgeon threw a twist into things. I believe the ENT is taking the aggressive approach to ensure we get it all since I am still young, while the RO and MO are more comfortable with the wait and re-test.

Not sure if I can offer any more information to get some experienced insight, but that is where we are at -- decision time.

Thanks in advance for thoughts/guidance.

Jasper.