Today was my first appointment with my PT. And I was hopeful that she could make me feel better about my lympodemic and frobrodic neck. ( I just made up those words I think). but I was on the table and she started stroking me like I was a cat. And in about 5 minutes my neck felt so much better than it has in few weeks. So I am happy knowing that there is some relief for the way my neck has been feeling. And for those of you that haven't seen a PT yet, I hope that you can get the same relief that I did. And she is teaching me how to do it on myself. (I wish I could just have taken her home with me.)The only down side to it is you have to do it a lot for it to be effective for the long term. But for now it is my new form of exercise. Hope you are all doing ok today! Shawn U.

. Radio/Erbitex:(35/6.) .6/13 RSSC with met.to left neck.9/11/13 MND with left tonsil removal.9/18/13 margins failed, .Dx Terminal. 10/22/13 Dx.StageIII Lymphedema. Carboplatin/Taxol, cancer progression,WECF
3/14/2014 given 2 weeks, 3 maybe. All the veins in my head are slowly leakinging due to Ehlers Danlos syndrome. lucky thing is that my spinal fluid leaking out my nose is slowing the build up of pressure in my huge, huge head. you would not believe.