 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Alicia,
Welcome to the neighborhood and I sincerely hope your time here is only a visit because of good news. You would not be human if you didn't worry at the mere possibility of the big C word. I believe I was one of the most fortunate cancer victims because the possibility was never even discussed until I had an incisional biopsy that started out as surgery to remove the lump in my neck. When I got the phone call on a Monday it was devastating news but things kicked into high gear adn I was set to start treatment with 2 weeks. As I look back, I realize that to try and avoid any worry until they positively confirm it is cancer is the best way to go. Now, if I can only remember that when I get the occasional lumps and pains in my neck, all will be better!
Keep pushing things forward until you get the results you need to move on. Best wishes to you.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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