| Senior Patient Advocate Patient Advocate (old timer, 2000 posts) Joined: Sep 2006 Posts: 8,311 | So many things to share and believe me you will get many helpful posts.
It's helpful if you start a Signature Line and add to it as your Tx progresses. I will assume you will have concurrent radiation and Chemo. I will also assume you will have 3 bags of the chemo Cisplatin. If not tell us in your new Signature Line.
For get about the hair loss. Most likely the only hair you will loose will be on the back of your neck where the radiation will exit. It will mostly grow back.
Now onto the important stuff.
First thing I will tell you is everyone can react differently to this Tx but my comments pertain to the majority of people treated just like you.
Where are you being treated?
You need to see a dentist familiar with oral cancer and the effects of radiation.
You need to get all dental work done pre rad including perhaps replacing metal fillings.
You need to get fluoride trays made and start using them.
You need to get a hearing test to establish a baseline.
You need to get your TSH levels tested and record this number for future reference.
You need to eat all your favorite things now and often. I don't care what your weight is, eat like it's a contest as you will loose most of your taste early on and won't regain it until post Tx.
For most the first few weeks are uneventful, mentally challenging but physically uneventful. Problems usually start after the 2nd bag of chemo which is appx after 15 days of rad and they continue to get worse until appx the 3rd week AFTER radiation ends. During that period is when most find it difficult to concentrate and work. You will also need a Caregiver, someone to help you when you need it especially during the rough periods. Educate yourself and then educate your employer but I doubt you will loose your job.
Pain will vary and there are many pain med options and don't be afraid to use them. More on that as needed.
This cancer is 50% or more mental and this site is dedicated to educate you and to help you get thru this Tx and it's recovery. You may not like what we have to tell you sometimes but believe me it's better to know as much about this cancer and it's treatment as possible.
Please ask us ANYTHING!!!
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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