I'd alert your team to the possibility that the primary tumor (which, as I read it, they have been unable to find) is located in the base of your tongue.

I went through a 60 day delay myself because they were unable to locate my own primary, which as you may have guessed, was in the base of my tongue.

CT scans did not show it, but the PET did. Perhaps they might run a PET on you with emphasis on that area (BoT).

If your cancer is HPV related, it is probably very slow acting and has not spread appreciably since your diagnosis.

Question: Is your state a Medical Marijuana state? If it is, I'd also recommend getting a card ASAP. Cisplatin will introduce you to nausea.

Other than that, I echo everything ChristineB said.

My intro: http://oralcancersupport.org/forums/ubbt...3644#Post163644

09/09 - Dx OC Stg IV
10/09 - Chemo/3 Cisplatin, 40 rad
11/09 - PET CLEAN
07/11 - Dx Stage IV C. (Liver)
06/12 - PET CLEAN
09/12 - PET Dist Met (Liver)
04/13 - PET CLEAN
06/13 - PET Dist Met (Liver + 1 lymph node)
10/13 - PET - Xeloda ineffective
11/13 - Liver packed w/ SIRI-Spheres
02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node
03/15 - Begin 15 Rads
03/24 - Final Rad! Woot!
7/27/14 Bart passed away. RIP!