[quote=digtexas]Christine, thank you for re-directing the thread. As I am trying to gain weight, I eat whatever I fancy, even chicken fried steaks!
Thank you Anita Frances and Zenda for responding. Although my dental oncologist has been keeping an eye on my mouth and dealing with suspected osteonecrosis for a long time, I still did not expect this cascading series of issues that have ensued since my sequestrectomy in February. Just as I was getting used to the hole in my gum and the HBO treatments,I got hit with the malaise which turned out to be my first bout with aspiration pneumonia, which led to the ear tubes, after I could no longer clear my ears in the chamber. Then came the poor vision and weakened voice, making me deaf, blind and not much of a public speaker. Little by little I am addressing these issues.
I was expecting to be told to get ready for the mandibulectomy, but for now another sequestrectomy is in my near future, although I would not be surprised if the bigger surgery still awaits me in the not too distant future.
I am not complaining. These last 9 years have been great...with all of my 3 kids graduating college and starting careers, my oldest daughter getting married, my return to work, re-marriage, followed by a lot of travel and golf, plenty of good times, and still being here for my 94 year old mother. In fact, I have lived mostly like other folks who did not have stage 4 cancer. But for my ubiquitous water bottle and a little throat clearing when eating, nothing much about me even revealed my condition. Now, as I approach 11 years from diagnosis and treatment, things are changing, and I will deal with it, much as many of you here have dealt with so much more than I have had to endure.
I applaud your courage.
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Well crap Danny. I am so sorry to hear all this. Haven't seen many posts since your 10 year anniversary. What an ordeal you have been faced with my friend. As we emerged on the other side of treatment I was amazed at all the things you were doing. To hear all this just breaks my heart.

I went through a downturn around the 5th year. Total muscle wasting. I lost about 96 lbs and am now battling nerve and muscle issues along with fibrosis of my left long. All of it is from the radiation as well. I am on a ventilator at night and now it seems I am moving towards using it off and on during the day. They wrote me off long ago and told me to go home and die. I hate what you are dealing with. There has to be more done to figure out how much radiation is more than the body can handle or how to flush it out after it has done it's job. P

Good luck and best wishes you can tackle each issue through resolution.

I am planning on being in Houston for the October 12 walk if you are up to visitors. I plan on being there from October 10-October 19. Hang in there.

Ed