 Senior Member (100+ posts)
Joined: Aug 2013 Posts: 144 | Well Survivor39 I too have lymphedema and like you I have little to no pain over it. But just by chance I was visiting OCF this morning to check and see just how swollen one can become with this Lymphedema. my seems to be spreading. and is actually starting to fill into the back of my neck and going up from there. And my neck is as hard as a brick wall. Perhaps you may know something about it. But in answer to your Question,I think it depends of the individual and whether their are pain receptors close by. Sorry that is my best shot. Shawn.
. Radio/Erbitex:(35/6.) .6/13 RSSC with met.to left neck.9/11/13 MND with left tonsil removal.9/18/13 margins failed, .Dx Terminal. 10/22/13 Dx.StageIII Lymphedema. Carboplatin/Taxol, cancer progression,WECF
3/14/2014 given 2 weeks, 3 maybe. All the veins in my head are slowly leakinging due to Ehlers Danlos syndrome. lucky thing is that my spinal fluid leaking out my nose is slowing the build up of pressure in my huge, huge head. you would not believe.
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