Hi everyone,
I was diagnosed with Oral Lichen Planus so long ago, I can't remember - sometime in the 80s or 90s.
It was usually just a sort of white spider's web on the right inside cheek and would occasionally 'flare up', causing ulcers on my tongue. These were cured with a steroid mouthwash or Adcortyl in Orabase.
No-one ever told me it could lead to cancer so, when we moved from Manchester to Kent in 2006, I didn't bother to register with a specialist for check-ups because it wasn't giving me any grief.
After 7 years, when I next got an ulcer, the normal treatments didn't work, and it took 5 months to even get a biopsy.
That showed cancer, so I have just had laser surgery to remove it. I still have over half of my tongue, and am getting back to eating normally, thought I can't yet speak properly at all.
I'm just wondering what are the chances of recurrence and what horrors might be in store if it does come back


1990s: Oral Lichen Planus
Feb 2013: Persistent lateral tongue lesion
Jul 2013: Biopsy
Aug 2013: Diagnosis - T1N0SCC
Sep 10: Laser surgery to remove 1cm lesion with 1cm margin and biopsy of smaller second lesion further back
Sep 23: Tumour confirmed poorly differentiated & aggressive. Scans pending.