hey PaulB, 8 recurrences is mind blowing.(I plan on getting more hip to the lingo here.)How far down do you have to reach to get through that? Well I count myself lucky to have met you here. I am very interested in the trial you were referring to. As for the positive margin I am not sure. But he said that the tonsil did have cancer in its bed. as far as the nodes go he said that they found cancer in the lympatic system. And prior to the dissection I had a lot of lymph fluid that would pool in my neck overnight. So if I slept on my right side I would wake with a huge pool of lose lymph that would take sevral hours for gravity to even things out. So you think it may be feasible to do Chemoradiation alone? I will ask to see my last set of labs. and hope that my viral load and t cells are still going up from the first round of radiation/Erbitux. I think I mentioned that I only have Kaiser P.


. Radio/Erbitex:(35/6.) .6/13 RSSC with met.to left neck.9/11/13 MND with left tonsil removal.9/18/13 margins failed, .Dx Terminal. 10/22/13 Dx.StageIII Lymphedema. Carboplatin/Taxol, cancer progression,WECF
3/14/2014 given 2 weeks, 3 maybe. All the veins in my head are slowly leakinging due to Ehlers Danlos syndrome. lucky thing is that my spinal fluid leaking out my nose is slowing the build up of pressure in my huge, huge head. you would not believe.