Hi don...I started having problems eating orally after my TORS and went from 113 to 103 rapidly, and couldn't afford to lose one more pound. I needed to put weight on before tx so I started the tube early and ate orally for awhile and now I'm dependent on the PEG. I do eat food daily for practice (tho very little) and drink a good amount all day, tho that's getting harder to do. I have the magic mouthwash but I don't think it's time for it yet. I'm back up to 111. I really don't understand why I couldn't/can't eat. Probably both physical and psychological. I'm usually a strong person, I'm the one people come to for advice, etc. This journey has knocked me on my rear end...and hard. I'm not me anymore (mentally) and of course I hate it. The forum keeps me aware I will be me again one day, even of its a little bit different, a new normal.
Made several calls this morning and waiting for the dr to call back and order the pump that Christine suggested, and some reglan. You are incredibly kind to offer to send your formula. Dietician doesn't feel it's the formula since I've been fine thus far and believes its just all the changes I'm going through bec of the tx and mucous.
Many many thanks.