Well I made it through treatment. Had my last radiation treatment on Tuesday 20th August and after loosing hearing in my ears only ended up having 1 of the 3 planned chemo's.

So it's now 2 weeks tomorrow since treatment finished. I'm still taking M-Eslon long-lasting morphine morning and night and Sevredol fast-acting short-term morphine several times a day for pain and to try to eat. I'm only managing weetbix (runny with lots of milk), soups, 2-min noodles (with lots of soup/water) or custard. The pain in my throat seems to be at it's worst and I'm so over eating the same things. I know it's early days but when will thing start to improve.

My saliva is already a very little bit better and even a very small part of my taste buds seem to have come back and even though it's such a small increase I'll take what I can get and I'm relishing the change.

Tried to eat mashed potato last night and it stung so much and felt like it had chilli in it (which of course it didn't).

What's next? How will my recovery proceed? I know everyone's different but please give me some hope that this won't continue for another 3 months...


2013 - 39yr old female, DX BOT SCC Stage IVA (T1N2bM0) HPV+
28 May 13 - Pharangoscopy & tongue biopsy
29 May 13 - BOT Surgery & right ND (lvls 2-5)
31 May 13 - Hemorrhage, emergency trach, critical care
BOT clr mgns, 9/67 nodes & extracapsular extension
Finished 30 rads & chemo (cisplatin) stopped after 1 round due to hearing loss
May 2015 - left supraclavicular swollen lymph node & area - CT planned 9 May