 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Neuropathies, neuralgias, etc., are all related to late effects of treatment. Radiation and/or chemo is the most likely cause and since you did not receive chemo, radiation could be the culprit. Curious if your neck hurts and if you have had a spinal MRI.
Radiation damage can mimick about any neuromuscular disorder. Reynaud's-like symptoms and even thoracic outlet syndrome symptoms can be caused by scar tissue around the base of the neck which would cause many of the issues you are experiencing. In my case mostly my small finger and ring finger goes numb for hours at a time on both hands. Even muscle weakness in the blood veins can cause similar symptoms. The main problems are vaso-restriction for veins traveling through any scarred areas; likewise arteries. In addition nerve damage from the radiation prevents or restricts current flow.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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