Haven't posted in a while...letting the demons run the show is SUCH fun I just couldn't stop the fun...
My tumor, which, up until a few weeks ago, was neatly tied up in a nice painful cyst on the side of my neck, has moved rather quickly down my neck and presented itself in/on/around the inner portion of my clavicle. Small swelling, <<BIG PAIN>>
Doc has decided radiation is the way to go; YUP! It seems after 5 years it's okay to re-tadiate; actually this is a bit lower, but same general area. I'm not familiar with radiation being used to relieve pain...am I just (predictably) under-educated or have I been half asleep all along?
In addition to this I'm also on two different blood thinners (coumodin as well as lovonox) -as I seem to have a clot in my left jugular. (Oh, yeah...by the way...!)This concerns me as I know so little about blood clot issues and associated problems.
I'm having to be tested regularly to make sure my blood isn't too thick or thin; it's swung WAY to both directions; and it seems that this could become a MUCH bigger problem (rather quickly!) than the tumor movement and associated pain.
Any experiences in this area would be greatly appreciated as I have learned over the years to truly HATE surprises! ;-)
-Gordon