I was never tested for HPV in 2009, to my knowledge. It was mentioned as possibly the cause by the MO, but I knew very little about it, and never asked further, and I fell through the cracks, and so did my treatment. It wasn't until two years later that I inquired with my ENT, and he saw nothing in the files I was tested. My CCC is also at the forefront with HPV studies, so I don't know what happened, probably not required then, but believe testing is now for any oropharyngeal cancer. There wasn't as much information as there is now about HPV, at least what I saw initially nor that there was a better survival rate with HPV. Anyway, the treatment was/is basically the same for positive and negative HPV. Although, I did have Induction Chemo, to be followed by Chemoradiation, which I found later there was a study for it with HPV about then. I don't know if I was a participant or was used off label. Fact is, I didn't even know what type of chemo I was getting then, and just signed papers lol. I thought I was tougher than anything, cancer, chemo lol.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs