Oh Jessica, I hear you! Getting a diagnosis and then hitting delays in getting to the next step is beyond frustrating. Of course you desperately want to get a plan moving!

I would call MDA and explain that you do have one scan (the 5 mm version) and have a definitive diagnosis but can't obtain another contrast scan due to pregnancy. You aren't the first person in this situation and if we can get you past the screener folks there will know how to proceed while protecting your baby.

I know it's thin reassurance, but look at peoples' timelines and you'll see that there's almost always a delay before treatment starts, sometimes several months. These aren't cancers that should be ignored, but on the other hand they're not usually a disease that has to be treated as soon as it's discovered.

<<<HUGS>>>

Mama


53
T3N2aM0 HPV+
5/26/13 discovered painless superball-sized lymph node in neck
6/26/13 DX SCC R palatine tonsil
7/16/13 TORS tonsillectomy & selective ND, mets to 2 nodes
9/3/13 Cisplatin and rads begin, tolerated 1.5 of 3 planned chemo doses
10/16/13 Treatment ends
Dec 13 Ulcer appears at surgery site
Jan 17 Biopsy -- no cancer!
Feb 17 CT/PET Scan lights up tonsil bed & nasal cavity, docs say probably inflammation, don't panic, rescan when ulcer subsides