Hi everyone -

Things have been going really well in the last few months with respect to recovery. Eating normally, dealing better with acidic and spicy foods (tomatoes, some salsas, oj, etc) until a few days ago.....
I started getting the following symptoms on the side of my face that received the greater dose of radiation:

-Ulcers/sores in mouth (on tongue and back of mouth/soft palet)
-fairly strong pain in ear, with the feeling I need to clear pressure in it
-pain in my jaw and below my jaw on the neck
-headache
-pain swallowing and a feeling that throat is smaller
-slight pain on my scalp if I move my hair around (for example running hand through hair)
-No fever

I was thinking this could be an ear infection or some other type of infection, but the mouth sores seem odd to me. Its also strange that there are so many diverse symptoms and they are only on the side that had the heavy dose of rads. I almost feel like I did only a month out of treatment with all the pain in the mouth and swallowing pain. Have been taking tylenol to manage the pain, but it doesn't fully deal with the pain currently. Hopefully this is something minor and not representative of something to do with the radiation - the gift that apparently seems to keep on giving....

I'm planning on calling my MO tomorrow and seeing if she has any ideas / wants to see me.

Any thoughts from someone who has had similar symptoms?

Thanks for any thoughts


Andrew
age 25

early 10/12 - enlarged lymph node area
01/13 SCC of L tonsil, L BOT, 2 L lymph nodes
stage IVa, T2N2bM0, HPV+

2/13 2 doses cisplatin big bag, 2 doses weekly cisplatin + 35x IMRT
4/13 TX finished
7/13 PET/CT - NED!