OP  Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 8 | Thank you all for your kind thoughts and prayers. It is indeed a very difficult time for us.
PaulB, the RO has already ruled out surgery; his comparison being, "when your house is on fire, just dousing the bedroom won't help." The MO is in charge of drug development and it is possible that she might suggest clinical trials.
Nancy14, your case (I read about it on the other thread but could not comment as I was still waiting for the results of John's CT scan) may be quite different. Please take it a day at a time and try not to get ahead of yourself.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
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